Category: Myasthenia Gravis

a condition causing abnormal weakness of certain muscles.

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Ebenezer’s guide to Christmas

What do you want?  I’ve spent over 2 hours trawling one of the biggest shopping websites in the world and I still can’t find something I actually want.  Bah humbug to it all.  Why do I have to force feed myself reasons to be jolly anyhow?

What’s really important is being around people who actually care about my existence.  Besides, the things that give me a real buzz cannot be bought with a civilian security clearance or are too elite to be on any retail shopping outlet.

December 25th, 2017 Daytona Beach (destination not reached)

7 ways to sidestep Santa mayhem – online and offline

Give small but niche token gifts
Use a daily cash envelope system
Use Load-up cards only
Carry a food flask so you don’t eat too much
Talk and Dream about Summer 2018 holidays
Grab the designated driver card to avoid drinking
Downgrade to a “dumb” phone…Text and Talk only

Run out of Pyridostigmine

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Spent an offline weekend in Chorley, a lovely small town in Northern England.  It was my first trip and I kinda treated it like a reconnaissance mission as I positively want to come back next Summer.

Our trip took us through Manchester Piccadilly but I wasn’t really impressive, maybe it’s because I’m a Londoner.  We did, however, discover an absolutely brilliant hidden local gem called Gents Pie Shop which sold homemade quality Northern Pies, Butties and cakes.

Trying to find the perfect Life formula

The Mince Pie made its way back to Vienna but I scuffed the Butty and Tata Pie in-between London and Gatwick.

10mg Lecithin

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A radical approach

Fasting for something has always seemed extreme to me. The notion of self-denial is hard to accept.

But desperate times mean desperate notions.

I will be fasting today for someone who is in need of a positive interview selection.

6 am – 6 pm Fasting

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How to avoid S.A.D

Pretty pleased with my Orlando Winter shopping trip.  Didn’t get all that I wanted but really happy with my new Tims.  So much so, that I’m compelled to buy a second pair same style.

I truly don’t know if I actually suffer from winter depression or whether it’s just another made up Western medical condition but this year I’m taking no chances.

I’m currently on stand-by waiting for “something big” to drop but in the meantime, my main plans are to swing by Florida again in December to see 2018 in on Daytona Beach.

Time to reset some of my personal goals as I’ve missed 3 major career ones this year.

Myasthenia Gravis is a stealth parasite, it feeds on your low feelings, anxieties and stress. 

Over the years, I’ve altered my behaviour to adapt to the condition.  Naturally, this doesn’t always look good to those close to me.

I simply become aloft and robotic, not caring about anything around me and dive into work and Gaming.  In truth, I do care and am probably oversensitive to my Loved ones’ Joys and Pains.  It’s a messy method but helps me out of the weakness tunnel.

No meds available today

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I want to break free

My games library contains more filler and incomplete games than usual.  Time to delete some.

inFAMOUS Second Son
Just Cause 3
God of War® III
Retro Library – PacMan etc.

Open Worlds games at least give the illusion of choice

These button-bashing teenager games are brilliant but far from my usual Open World Player Verses Environment (PvE) setting.

I still need to complete Tales from the Borderlands and Until Dawn.  Re-living the BioShock series is excellent but I’m waiting for FarCry 5 (early 2018) and Horizon Zero Dawn: The Frozen Wilds (Nov 2017).

Star Wars Battlefront II (17-Nov 2017) is going to be hard to resist but Last of Us 2 and Days Gone are still nowhere to be seen.

Had my last 60mg of Pyridostigmin (Mestinon) today